“Rising to the challenge of medication harm requires communication and care”

One of Research Australia’s Health Services Research Award nominees, Professor Libby Roughead, wrote an article for the not-for-profit journalism organisation Croakey.

“In 2017 the World Health Organization launched a global challenge to reduce severe, avoidable harm related to medications, by fifty percent within the next five years.

Each participating country will bring its own set of circumstances to the challenge. In Australia, the Australian Commission on Safety and Quality in Health Care released a discussion paper earlier this year, seeking submissions on how we can use our existing systems to achieve the goal, and where we need to bridge the gaps.

Professor Libby Roughead is Director of the Quality Use of Medicines and Pharmacy Research Centre at the University of South Australia.

In the post below, she outlines the challenge ahead, reminding us that, at its heart, medication harm is a problem that centres on people.” – Croakey

Please click here to view the article

ALP GUARANTEES $20B HEALTH AND MEDICAL RESEARCH FUND

After years of campaigning by Research Australia, the Australian Labor Party has committed to the full $20 billion capitalisation of the Medical Research Future Fund (MRFF) by 2020-21.

The MRFF is a once-in-a-generation plan to underwrite health and medical research, providing better health outcomes for all Australians; and a safer, better quality and more effective health system.

Research Australia CEO and Managing Director, Nadia Levin, said she was thrilled that the MRFF now has bipartisan support, with the fund to reach the full $20 billion by 2020-21.

“Let’s be clear – every dollar invested into medical research is a dollar invested into the health of all Australians, and the health of our economy,” Ms Levin said.

“This funding will make a tangible, measurable difference to the lives of Australians, from treatments for people touched by common killers, through to those with rare diseases.

“It is incredibly rewarding to see both sides of politics reflecting so closely the commitment we called for in our Pre-Election Statement<https://researchaustralia.org/pre-election-statement/> on behalf of the health and medical research community.

“We would like to express our gratitude to the Shadow Minister for Health and Medicare, Hon Catherine King MP for meeting with us recently in April to discuss the issue.

“At the end of the day, this funding will allow new medical discoveries and treatments to bring hope to Aussie patients.

“Research Australia recognises the significant scale of this win, which our membership has been calling for since we convened a Pre-Election summit in 2018.

“This bipartisan support is an important underwriting of a rapidly evolving area of research and healthcare, and will further strengthen Australia’s expertise and build upon our potential.

“The beneficiaries of the MRFF are universities, medical research institutes, not-for-profits and commercial medical research, and ultimately the Australian people and the economy.

“I challenge people to come up with a list more worthy of support.”

To find out more about Research Australia visit: www.researchaustralia.org<https://www.researchaustralia.org>

For more information please contact: Lauren Devlin 0449 041 214

Research Australia Welcomes Frontier Funding Open for Application

Thursday 6 December 2018

RESEARCH AUSTRALIA WELCOMES FRONTIER FUNDING OPEN FOR APPLICATION

Research Australia has enthusiastically welcomed the announcement by the Minister for Health, Hon Greg Hunt MP, that the Frontier Health and Medical Research Program is now open and taking applications.

This morning at the University of Canberra, Minister Hunt officially launched the Frontier Health and Medical Research Program, which will give researchers significant funds for their innovative and transformational medical research.

The Government’s Frontier Health and Medical Research Program will invest $240 million over five years in cutting edge medical science which promises new treatments and technologies to improve health, and open new markets for industry growth. This includes fields such as space medicine, artificial intelligence, robotics and microbiomics.

Research Australia CEO and Managing Director, Nadia Levin, said, “There is incredible frontier research underway in Australia today which will transform the way future generations manage their health.

“Research Australia first called for a funding boost to these disciplines because we understood the potential which already exists in Australia to become a world leader in frontier disciplines.

“We absolutely welcome today’s announcement. It’s wonderful to see the Government and the Australian Medical Research Advisory Board have taken on board the views of the health and medical research sector in developing a program for investing in frontier medical innovation.”

Funded from the Medical Research Future Fund, this Australian-first program was developed in consultation with Research Australia on behalf of the health and medical research community, and consists of a two-tiered process.

In the first stage, up to ten successful applicants will receive funding of up to $1 million each over one year to develop planning for their revolutionary research projects.

In the second stage, a number of research plans developed under stage one will be chosen to receive a further funding boost to progress their ideas into new technological advances or approaches to transform the future of healthcare.

“This is new and bold health and medical research funding which takes an economies-of-scale investment approach. Importantly, it positions Australia as a valuable contender in the global health space which means more opportunities for us all,” Ms Levin said.

To apply visit: www.business.gov.au/fhmr

Media contact: Lucy Clynes, Research Australia, 0404 068 912

To view the media release, please click here

Australians embrace health and medical research in a changing landscape of healthcare

Media Release
September 12, 2018

Australians continue to place improving hospitals and healthcare as the number one spending priority for the Australian Government ahead of infrastructure, education standards and employment opportunities.

We are pleased to see that more funding for health and medical research is the 6^th most important of the 27 priorities presented in the poll. (It has been consistently in top 10 ever since we started polling in 2003.)

Interest among Australians in health and medical research is high with 89% saying they are interested in health and medical research. However, while confident in their ability to contribute to decision making about the future direction of HMR most Australians don’t know how, and many don’t believe they’d be heard. Our governments and research organisations clearly have more work to do to meaningfully engage with the broader community.
Continue reading “Australians embrace health and medical research in a changing landscape of healthcare”

Research Australia Welcomes My Health Record Reforms

MEDIA RELEASE
1 August 2018

My Health Record: Health and medical researchers welcome strengthened privacy

Australia’s health and medical research sector has welcomed Government moves to strengthen privacy protections of the My Health Record.

“Australians must be able to confidently participate in this scheme. Strengthening the My Health Record Act is an important first step in ensuring public trust in the system.

“People have real concerns over privacy and access of their My Health Record and those concerns must be heard and addressed through additional communications to the public about the benefits and purpose of the My Health Record. This is too important an opportunity to forego because of a lack of information,” said Research Australia’s CEO, Ms Levin.

An overnight poll of Research Australia members shows continued support from the health and medical research community for the My Health Record, with a majority of respondents in favour of the scheme.

Research Australia has written to Federal Health Minister, Greg Hunt, offering the assistance of health and medical researchers in explaining how My Health Record data could be used to further vital health and medical research and improve our health system.

Research Australia is the national peak body representing the whole of the health and medical research pipeline: www.researchaustralia.org

Media contact: Lucy Clynes 0404 068 912

Corporate Giving And Innovative Research Have The Greatest Impact

Commitment, support and passion are hallmarks of organisations making a difference and this is even more significant when it’s to fight a devastating childhood cancer.

With very few treatment options and no cure yet, diffuse intrinsic pontine glioma (DIPG) is a devastating childhood cancer, that is highly aggressive and difficult to treat due to the location of the tumor. The only way is through expensive medical research.

At a gala event in Melbourne last Thursday, the national advocacy body, Research Australia awarded the QBE Foundation the Leadership in Corporate Giving Award for amazing support of The Kids’ Cancer Project to raise funds to find a way to beat this terrible disease.

Continue reading “Corporate Giving And Innovative Research Have The Greatest Impact”

Inspiring action through generosity

The Great Australian Philanthropy Award was awarded to Mr Andrew Forrest AO and Mrs Nicola Forrest for their leadership in giving with impact and offering examples of good practice to encourage further social giving.

This follows their work through the Minderoo Foundation and the announcement in May of one of the Australia’s largest private donations totalling $400m. This includes $75 million dollars specifically earmarked for the Eliminate Cancer Initiative with funding to be used as planning capital to unite, encourage and reward the global cancer industry to collaborate and coordinate their efforts and specialise their focus to accelerate research, development, clinical trials and cancer care delivery.

Continue reading “Inspiring action through generosity”

Reducing Hip Fractures with data

Falling over and breaking any bone, let alone your hip, is not something any of us wants to think about, but it is all too often the reality for older people, with serious consequences.

One in 20 older hip fracture patients will die before they leave the hospital; one in 10 aren’t able to go home and instead transfer to an aged care facility, and more than half are still unable to walk after 12 months.

Continue reading “Reducing Hip Fractures with data”

How a devastating diagnosis inspired a passion for health and medical research

The Incredible Story of Megan Donnell

When the rare and devastating Sanfilippo Syndrome struck Megan Donnell’s family, she responded by setting up a $3 million Foundation to fund high-quality medical research into the condition.

Sanfilippo Syndrome is an extremely rare, genetic disorder which causes progressive brain damage. Currently, there is no cure. Reeling from the news that their own two children had been diagnosed with Sanfilippo Syndrome, the Donnell family were reportedly told by doctors “not to bother chasing cures because there aren’t any.” Ms Donnell resigned from her role as a management consultant to establish the Sanfilippo Children’s Foundation.

Continue reading “How a devastating diagnosis inspired a passion for health and medical research”

Australian leads development of world’s largest MS database

Melbourne University’s Professor Helmut Butzkueven has tonight been awarded Research Australia’s Data Innovation Award for his incredible work developing MS Base, the world’s largest Multiple Sclerosis (MS) database sharing, tracking and evaluating clinical data in more than 55,000 people with MS from 33 countries.

Continue reading “Australian leads development of world’s largest MS database”