Flying Blind | The Australian Health Data Series
Flying Blind is a series of three reports dedicated to uncovering the acute levels of data fragmentation existing at all levels of Australia’s health landscape.
CMCRC in collaboration with Research Australia is currently working on the second report which examines Australia’s health and medical research data environment and traces the difficulties that Australian researchers face at each stage of their journey as they attempt to access research data. Volume One dived into consumers and digital health through the patient journey, service fragmentation, health data silos, legislation, regulation and policy and consumer concerns and perceptions.
As we write Volume Two: Researchers and the Health Data Maze, we’ll be publishing regular blog posts of interest to this topic. The blog is updated regularly by members of the CMCRC’s Health Market Quality program and Research Australia. If you would like to be a guest blogger please email Lucy Clynes with your expressions of interest.
Bookmark this website today: https://flyingblind.cmcrc.com/researchers-health-data.
Continue reading “The Australian Health Data Series”
Health & Medical Research Awards
2016 Data Innovation in Health & Medical Research Award
Presented to an individual or team that has developed the most innovative method of gathering, making available, processing or interpreting data in a way that advances health and medical research. This new Award is being presented for the first time in 2016.
Congratulations to Award Winner: Capital Markets CRC, Health Market Quality Team
Continue reading “2016 Data Innovation in Health & Medical Research Award Winner: Capital Markets CRC”
Media Release: Wednesday, 7 September 2016
Some 91 per cent of Australians would be willing to share their de-identified medical data if it went towards research purposes.
That’s just one of the important findings from a Roy Morgan Research poll conducted on behalf of Research Australia as part of their annual national Australia Speaks study.
“What scientists and researchers need is data to develop new treatments and to track changes in the rise and fall of diseases over time,” said Research Australia CEO, Nadia Levin.
Continue reading “New Poll: Australian’s will share their personal health data if privacy protected”
The Productivity Commission is undertaking an Inquiry into the availability and use of public data. Research Australia’s submission in response to the Issues Paper emphasises the importance of improved access to public data as a means of facilitating Australian health and medical research. It highlights the importance of linked datasets and identifies a number of cultural and legislative barriers to the greater use of data for research purposes. It also provides some case studies and makes some recommendations for improvement.
Data Availability and Use
Media Release: Monday 18 July 2016
Data from a forthcoming poll from Research Australia, an alliance of health and medical researchers, shows nearly one in five Australians use an activity tracking device daily or nearly daily.
Of the people who use activity trackers, three-quarters are prepared to share that data, on the proviso that it is anonymously used for health and medical research.
Continue reading “Pokémon Go could hold key to better research, healthier Australia”