Media Release: Wednesday, 7 September 2016
Some 91 per cent of Australians would be willing to share their de-identified medical data if it went towards research purposes.
That’s just one of the important findings from a Roy Morgan Research poll conducted on behalf of Research Australia as part of their annual national Australia Speaks study.
“What scientists and researchers need is data to develop new treatments and to track changes in the rise and fall of diseases over time,” said Research Australia CEO, Nadia Levin.
The Productivity Commission is undertaking an Inquiry into the availability and use of public data. Research Australia’s submission in response to the Issues Paper emphasises the importance of improved access to public data as a means of facilitating Australian health and medical research. It highlights the importance of linked datasets and identifies a number of cultural and legislative barriers to the greater use of data for research purposes. It also provides some case studies and makes some recommendations for improvement.
Media Release: Monday 18 July 2016
Data from a forthcoming poll from Research Australia, an alliance of health and medical researchers, shows nearly one in five Australians use an activity tracking device daily or nearly daily.
Of the people who use activity trackers, three-quarters are prepared to share that data, on the proviso that it is anonymously used for health and medical research.