Research Matters July 2019

Welcome to Research Matters. With the Federal election quickly receding in the rearview mirror, we take a look at the implications for health and medical research and in particular, what might be coming up.

To contribute to or discuss any of the items in this edition, please email Greg Mullins, Head of Policy, at greg.mullins@researchaustralia.org, or on (03) 9662 9420.

This communication features important information on:

  1. Research Funding – MRFF & NHMRC
  2. Personal Health Information 
  3. Prevention
  4. R&D

Please click here to view Research Matters July 2019

Australian Honours to our Members

One of our key roles as the peak body for health and medical research (HMR) is to bring to light the importance of HMR in our society and to honour and recognise the work being done in the sector.  Just as our annual awards give members the opportunity to recognise outstanding contributions, so do the esteemed Australia Day Honours and we’re delighted that so many of our member organisations have recipients in the list of those receiving such honours.

You might be interested to know that The Australia Day 2019 Honours list is the largest in the history of the Order of Australia – recognising 1127 outstanding and inspirational Australians. Women received 422 – or 37.4 per cent – of awards – the highest number and percentage ever. The number of nominations and awards for women are trending up.

We’d like to acknowledge the wonderful group who have received honours, and recognise that many recipients have worked collaboratively with a number of our members, so we spread our congratulations widely across our alliance.

To view the official Australia Day 2019 Honours List – please click the below link.

https://www.gg.gov.au/australia-day-2019-honours-list

 

Research Matters December 2018

Welcome to the last Research Matters for 2018. It has been another big year in policy for health and medical research, and with next year an election year the pace will not let up. While we are fortunate that HMR enjoys support from across the political spectrum there are differences in emphasis and approach that have implications how research is rounded, who is funded to do it, and the types of programs that are funded.

We look forward to keeping you informed in 2019, and are keen to hear from you about what you think the research priorities should be.

To contribute or discuss, please email Greg Mullins, Head of Policy (greg.mullins@researchaustralia.org), or phone (03) 9662 9420.

This communication features important information on:

  1. Research Funding, including MRFF
  2. Public Data
  3. TGA
  4. Charities
  5. R&D
  6. Senate Inquiries
  7. Submissions and Consultations    

    Please click here to view Research Matters December 2018

Introducing Flying Blind 2

Introducing Flying Blind 2

Australia holds high quality digital
health data that could be of incredible value to health and medical researchers. In spite of the abundance of digital data, Australian health and medical researchers spend several months and even years to assemble data required for their research.

Research Australia’s annual consumer surveys demonstrate that Australian consumers are willing to share their health data to support research. However, this is not reflected in the current restrictive environment where researchers face a myriad of problems as they navigate a complex environment enmeshed in legislative, ethics and other barriers around data accessibility for research. Very often these obstacles result in long delays where research funding almost runs out, forcing many researchers to abandon linked data studies and make do with small data sets or seek overseas data banks to address their research questions.

Flying Blind 2 offers a way forward with a series of recommendations to enhance medical research in Australia, saving lives and saving dollars. The report proposes:

1. A harmonised process of data governance that provides a path from collection to researchers, and that ensures privacy and confidentiality are maintained.

2. Appointing organisations to act as data holding organisations for both structured and unstructured data

3. Creating Accredited Release Agencies to build data collections suitable for research

4. Privacy, Security, Confidentiality by Design

5. Publicly accessible protocols so that all Australians can see how health data is used, and how it is making a difference.

6. A single national data rich access point for researchers, that would also benefit the healthcare and health technology sectors.

Flying Blind
Flying Blind is a series of three reports dedicated to uncovering the acute levels of data fragmentation existing at all levels of Australia’s health landscape. Flying Blind 1 focused on the consumer health journey and released in 2016. Flying Blind 2 focuses on enhancing medical research through data access. It was released in November 2018. Volume 3 will provide a view of data from the perspective of funders, policy and regulatory agencies.

Flying Blind is a collaboration between the newly established Digital Health Cooperative Research Centre (CRC), the Capital Markets CRC and Research Australia.

The Capital Markets CRC has been transforming research for over 20 years. We apply world-leading research infrastructure and analytical expertise to global markets including finance, health, energy and digital finance. The aim is to make them all fairer and more efficient, thereby benefiting our partners.

The Digital Health CRC was announced in April 2018. It is a $200+ million opportunity to transform health delivery: improving health outcomes; reducing waste in the health system; building businesses and jobs.

Our 80-member organisations represent every segment of the health system from patient to community, hospital to insurer, start-up to big government.

Our researchers, from 16 universities, will work with our health partners to develop and test solutions that work for real patients in real hospitals and other settings of care. And our business partners will work alongside them to ensure that the solutions are scalable and implementable. We’ll develop them in Australia, then take them to the world.

Research Australia is the voice of health and medical research participants across the health and medical research pipeline. We have broad insight into what patients and consumers, funders, researchers and commercial groups can contribute and require from it.

Click here to view Flying Blind, a series of three reports: https://flyingblind.cmcrc.com/

Research Australia Welcomes Frontier Funding Open for Application

Thursday 6 December 2018

RESEARCH AUSTRALIA WELCOMES FRONTIER FUNDING OPEN FOR APPLICATION

Research Australia has enthusiastically welcomed the announcement by the Minister for Health, Hon Greg Hunt MP, that the Frontier Health and Medical Research Program is now open and taking applications.

This morning at the University of Canberra, Minister Hunt officially launched the Frontier Health and Medical Research Program, which will give researchers significant funds for their innovative and transformational medical research.

The Government’s Frontier Health and Medical Research Program will invest $240 million over five years in cutting edge medical science which promises new treatments and technologies to improve health, and open new markets for industry growth. This includes fields such as space medicine, artificial intelligence, robotics and microbiomics.

Research Australia CEO and Managing Director, Nadia Levin, said, “There is incredible frontier research underway in Australia today which will transform the way future generations manage their health.

“Research Australia first called for a funding boost to these disciplines because we understood the potential which already exists in Australia to become a world leader in frontier disciplines.

“We absolutely welcome today’s announcement. It’s wonderful to see the Government and the Australian Medical Research Advisory Board have taken on board the views of the health and medical research sector in developing a program for investing in frontier medical innovation.”

Funded from the Medical Research Future Fund, this Australian-first program was developed in consultation with Research Australia on behalf of the health and medical research community, and consists of a two-tiered process.

In the first stage, up to ten successful applicants will receive funding of up to $1 million each over one year to develop planning for their revolutionary research projects.

In the second stage, a number of research plans developed under stage one will be chosen to receive a further funding boost to progress their ideas into new technological advances or approaches to transform the future of healthcare.

“This is new and bold health and medical research funding which takes an economies-of-scale investment approach. Importantly, it positions Australia as a valuable contender in the global health space which means more opportunities for us all,” Ms Levin said.

To apply visit: www.business.gov.au/fhmr

Media contact: Lucy Clynes, Research Australia, 0404 068 912

To view the media release, please click here

Research Matters October 2018

There’s certainly been a lot of activity over a range of issues and policy areas recently and we’ve consolidated the key areas for our members in on Research Matters update.

This communication features important information on:

  1. Policy & Advocacy – Your Voice
  2. Consultations, Enquiries & Reviews; Mental Health & Aged Care
  3. MRFF; Grants & Priorities
  4. In Parliament; MHR, R&D Tax Incentives, Electoral Funding Reform
  5. COAG; Obesity, Human Tissue Acts
  6. Submissions Update

    Please click here to view Research Matters October 2018

2018 Annual General Meeting

Members are invited to attend the 2018 Annual General Meeting (AGM) of Research Australia Limited on Thursday 29 November at 09.30am being held at the Garvan Institute of Medical Research, Level 7 Boardroom, 384 Victoria Street, Darlinghurst NSW.

As you are no doubt aware, the AGM is a statutory requirement to receive and consider the financial statements and reports of directors, and election of directors.  It is anticipated that the AGM will run for a short time and will be followed by a light morning tea.

The following business will be transacted during the AGM:

ORDINARY BUSINESS

ANNUAL ACCOUNTS
To consider the annual report, financial statements and report of the Directors and auditor for the year ended 30 June 2018.

RESULTS OF DIRECTOR APPOINTMENT/S
To note the Directors who return and the appointment of new Director/s in accordance with the Company’s Constitution.

OTHER BUSINESS
Any other business that may be brought forward at a general meeting in accordance with the Constitution.

Note: A Member who is entitled to vote at the meeting has a right to appoint a proxy and should use the proxy form available here. One vote is entitled per member organisation.

The proxy form must be signed and dated by the Member and must be received via email no later than 5:00pm Monday 26 November 2018.

Notice of Election to the Research Australia Ltd Board of Directors
The new Board will be announced at the Research Australia AGM (details above).

Call for nominations will open today, Monday 12 November 2018.
The nomination form can be found here.

If you have any questions regarding the election process and/or the AGM please do not hesitate to contact Nadia Levin, CEO & Managing Director on (02) 9295 8546 or ceo@researchaustralia.org.

By Order of the Board

Australians embrace health and medical research in a changing landscape of healthcare

Media Release
September 12, 2018

Australians continue to place improving hospitals and healthcare as the number one spending priority for the Australian Government ahead of infrastructure, education standards and employment opportunities.

We are pleased to see that more funding for health and medical research is the 6th most important of the 27 priorities presented in the poll. (It has been consistently in top 10 ever since we started polling in 2003.)

Interest among Australians in health and medical research is high with 89% saying they are interested in health and medical research.  However, while confident in their ability to contribute to decision making about the future direction of HMR most Australians don’t know how, and many don’t believe they’d be heard.  Our governments and research organisations clearly have more work to do to meaningfully engage with the broader community.
Continue reading “Australians embrace health and medical research in a changing landscape of healthcare”

Research Australia Welcomes My Health Record Reforms


 

 

 

MEDIA RELEASE
1 August 2018

My Health Record: Health and medical researchers welcome strengthened privacy

Australia’s health and medical research sector has welcomed Government moves to strengthen privacy protections of the My Health Record.

“Australians must be able to confidently participate in this scheme. Strengthening the My Health Record Act is an important first step in ensuring public trust in the system.

“People have real concerns over privacy and access of their My Health Record and those concerns must be heard and addressed through additional communications to the public about the benefits and purpose of the My Health Record. This is too important an opportunity to forego because of a lack of information,” said Research Australia’s CEO, Ms Levin.

An overnight poll of Research Australia members shows continued support from the health and medical research community for the My Health Record, with a majority of respondents in favour of the scheme.

Research Australia has written to Federal Health Minister, Greg Hunt, offering the assistance of health and medical researchers in explaining how My Health Record data could be used to further vital health and medical research and improve our health system.

Research Australia is the national peak body representing the whole of the health and medical research pipeline: www.researchaustralia.org

Media contact: Lucy Clynes 0404 068 912

Research Funding Inquiry – your ideas needed

The Education and Training Minister has asked The House Standing Committee on Education, Employment and Training to inquire into and report on the efficiency, effectiveness and coherency of Australian Government funding for research, in the following terms:

  • The diversity, fragmentation and efficiency of research investment across the Australian Government, including the range of programs, guidelines and methods of assessment of grants;
  • The process and administrative role undertaken by research institutions, in particular universities, in developing and managing applications for research funding;
  • The effectiveness and efficiency of operating a dual funding system for university research, namely competitive grants and performance-based block grants to cover systemic costs of research; and
  • Opportunities to maximise the impact of funding by ensuring optimal simplicity and efficiency for researchers and research institutions while prioritising delivery of national priorities and public benefit.

This inquiry will be focused on federally funded research agencies, their funding mechanisms and university collaborative research. The inquiry will not consider the National Health and Medical Research Council’s Funding Programs, which are in the process of being reformed.

Research Australia will be making a submission, and we want input from our membership, to ensure we are accurately representing your views.

For context, areas areas we have addressed in the past include:

  • The inadequate level for funding of indirect costs
  • ‘falling between the cracks’- the scope for research proposal to fall between the ARC and NHMRC. Do you have an example?
  • The need for predictable, sustainable levels of funding for programs.

Please contact Greg Mullins, Head of Policy, (greg.mullins@researchaustralia.org) or Lucy Clynes, Head of Government Relations (lucy.clynes@researchaustralia.org) if you would like to have any questions or would like to contribute to Research Australia’s submission.