Tag: consumers

Effective and meaningful consumer involvement in HMR

In March 2024, the National Health and Medical Research Council (NHMRC) and the Consumers Health Forum of Australia Ltd (CHF) commenced a review of the 2016 Statement on Consumer and Community Involvement in Health and Medical Research (the Statement).

The Statement aims to support consumer and community involvement across all types and levels of health and medical research.

Research Australia’s submission has supported the expanded involvement of consumer and community representatives in HMR while emphasising the need for research organisations and funding bodies to appropriately train and resource researchers to ensure the involvement of consumers and community representatives is effective and meaningful.

Research Australia’s submission is available here.

National Medicines Policy- researchers as partners

Research Australia’s submission to the review of the National Medicines Policy has made the case for researchers to be formally recognised as partners in the Policy alongside government, industry, healthcare providers and consumers. We have also supported the expansion of the policy to include vaccines and new health technologies. Our submission provides examples of how the Policy can be more consumer-centric, by making better use of the data already collected to understand consumer behaviour in relation to medicines.

Read Research Australia’s submission.

The Australian Health Data Series

Flying Blind | The Australian Health Data Series 

Flying Blind is a series of three reports dedicated to uncovering the acute levels of data fragmentation existing at all levels of Australia’s health landscape.

CMCRC in collaboration with Research Australia is currently working on the second report which examines Australia’s health and medical research data environment and traces the difficulties that Australian researchers face at each stage of their journey as they attempt to access research data. Volume One dived into consumers and digital health through the patient journey, service fragmentation, health data silos, legislation, regulation and policy and consumer concerns and perceptions.

As we write Volume Two: Researchers and the Health Data Maze, we’ll be publishing regular blog posts of interest to this topic. The blog is updated regularly by members of the CMCRC’s Health Market Quality program and Research Australia. If you would like to be a guest blogger please email Lucy Clynes with your expressions of interest.

Bookmark this website today: https://flyingblind.cmcrc.com/researchers-health-data.
 Continue reading “The Australian Health Data Series”