The Incredible Story of Megan Donnell
When the rare and devastating Sanfilippo Syndrome struck Megan Donnell’s family, she responded by setting up a $3 million Foundation to fund high-quality medical research into the condition.
Sanfilippo Syndrome is an extremely rare, genetic disorder which causes progressive brain damage. Currently, there is no cure. Reeling from the news that their own two children had been diagnosed with Sanfilippo Syndrome, the Donnell family were reportedly told by doctors “not to bother chasing cures because there aren’t any.” Ms Donnell resigned from her role as a management consultant to establish the Sanfilippo Children’s Foundation.