Tag: Megan Donnell

2017 Advocacy Award Winner: Sanfilippo Children’s Foundation

The Advocacy award recognises and congratulates exceptional contributions made by
advocates who help raise community awareness and understanding about the importance of health and medical research.

Congratulations to 2017 Advocacy Award Winner: Sanfilippo Children’s Foundation

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How a devastating diagnosis inspired a passion for health and medical research

The Incredible Story of Megan Donnell 

When the rare and devastating Sanfilippo Syndrome struck Megan Donnell’s family, she responded by setting up a $3 million Foundation to fund high-quality medical research into the condition. 

Sanfilippo Syndrome is an extremely rare, genetic disorder which causes progressive brain damage. Currently, there is no cure. Reeling from the news that their own two children had been diagnosed with Sanfilippo Syndrome, the Donnell family were reportedly told by doctors “not to bother chasing cures because there aren’t any.” Ms Donnell resigned from her role as a management consultant to establish the Sanfilippo Children’s Foundation.

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